Hebrews 12:1-2a

"Let us lay aside every weight,
and the sin which so easily ensnares us,
and let us run with Endurance
the race that is set before us,
looking unto Jesus,
the author and finisher of our faith."
Hebrews 12:1-2a

Sunday, June 7, 2015

Set Back - Day 26

Today did not begin well. Minimal tummy pain yesterday afternoon got worse by bedtime, and although he thought what appeared to be indigestion would go away by morning as it had in pre-surgery days, it did not.

He woke at 1:30 and got up again at 2:30 and by 3:20 this morning, woke me with complaints of severe cramping. I thought he needed pain meds, but he said he thought a call to the on-call thoracic fellow at UIHC was in order. So I called. The lady doctor I spoke with recommended an x-ray of his abdomen to see if there was a bowel obstruction. We elected to have that done here in Cedar Rapids at St. Luke's, primarily because it was raining heavy and lightening filled the sky. She also said if there was anything St. Luke's would consider doing, he should be transferred to UIHC, since he is a patient there.

We arrived at St. Luke's ER at 4 a.m. and got in right away. Took labs, urine sample via catheter, received through an IV anti-nausea meds (even though he wasn't nauseated) and pain meds - dilaudid, which is really hydromorphone - once every hour PRN. Also a CT scan of abdomen and chest x-ray were taken. Diagnosis showed a blocked bowel and urinary tract infection. The pain meds weren't helping his pain management very much, with pain levels only dropping from a 9-10 to a 7.

He was transferred to UIHC Emergency, leaving St. Luke's via ambulance, and got there around 9:20 - 9:30. I followed a little later and arrived at 10 a.m.

The UIHC staff  drew more blood, put an NG tube down his nose, did another x-ray of his tummy and took a urine culture. The NG tube was to remove air from his tummy which was causing it to be distended. Jimmy thought the problem was a result of what he was or was not eating, but Dr. Nick Yerkes (one of the doctors we saw on his previous 10-day stay) said not so. He wasn't eating anything wrong. He said the blocked bowel is a result of scaring from the surgery and anesthesia.

Dr. Yerkes said surgery was a possibility, but didn't think surgery was necessary at present. Jim is to stay in the hospital at least a couple of days to rest the bowels and hopefully it will resolve itself.

No food or drink or crushed meds to be given by mouth or through the J-tube. His meds all come through the IV, so the meds he has been taking since coming home that had to be crushed and given through his J-tube he won't be getting for now - that includes calcium, proscar, coumadin, melatonin and pravastatin. Of the four liquid meds given through the J-tube, only liquid benedryl is available through the IV, and that one he will be given at bedtime as a sleep-aid and allergy relief.

When I left the hospital at 5 p.m., results of the urine culture were still not available. The culture will give us more information on the urinary tract infection and with what antibiotics to treat it.

Jim called at 7:10 p.m. He was just given an enema - fun, fun - to get his bowels moving. Not working very well. Next step is a suppository.

Side Notes:
  • Free parking today -- since Jim was transferred from St. Luke's to UIHC Emergency, that is where I drove to, and there is no charge for emergency parking. Yeah! 
  • Jim had a bladder scan at 4 p.m., showing 400 ccs, but two attempts at catheterizing didn't work until Jim and I tightly held hands.... interesting... God gave us together the power to produce a flow. 
  • Jim commented that his room (for 2) is hardly big enough to turn around in.
  • When he and I want to be silly, we talk about dancing ... a real slow dance, standing in place. Of all things, there's a picture in the room called "The Singing Butler" by Jack Vettriano and a man and woman are dancing. How fitting. 
Room and Phone numbers: 
  • Jim is back on 4th floor, Roy Carver, East Unit, Room 105, 1st bed
  • Phone number is (319) 353-9193

Saturday, June 6, 2015

Recovery At Home - Day 25

Today was quiet for Jim, busy for me.

He had 2 teaspoons of cream of wheat this morning and later a tiny glass of apple juice. Sometime between the two, his stomach started hurting, but it didn't seem to be bothersome for him. Since we were getting groceries later today, I suggested maybe some warm 7-Up or ginger ale would be good, and he agreed.

He had pain meds at 3 p.m.

By the time I finished work at nearly 7 p.m.!, he had 2-3 teaspoons of cream of chicken soup, and after we finished grocery shopping at Fareway, where he got his walking in for the day, he decided to have some ice cream.

It's now 8 p.m. We're going to watch a movie.

Well, the ice cream seems to play havoc with his tummy, so he may not be having it so much. Perhaps it is too sweet for now and can try it again later as his tummy gets used to having real food.

Friday, June 5, 2015

Recovery At Home - Day 24

Friday. It seemed like Saturday all day long. I had errands to do before I could start Gazette work, so I got up earlier to do all the usual things. The errands included filling a prescription for pain meds and getting melatonin that was crushable. We bought melatonin the other day, but neither one of us realized they were geltabs until last night. Ugh! As for the liquid pain medicine, CVS Pharmacy on Center Point Road NE didn't have anywhere enough, so I asked them to track down someplace close that did. CVS on Mount Vernon Road had almost the correct amount, so I drove across town to have them fill the prescription. On the way, I discovered 19th Street was pretty much closed.

Today Jim could start eating/drinking all liquids, so he had 4 teaspoons of cream of wheat, a tiny glass of apple juice, 2-3 teaspoons cream of chicken and 2 teaspoons ice cream.

He got his evening walk in when Christina and Austin were over for supper and we all went to Walmart to check out baby things.

Thursday, June 4, 2015

Recovery At Home - Day 23

Little by little Jim is getting stronger. However, as long as there are stitches in the area around his J-tube, he will have discomfort, because the stitches pull. I could see how the stitches pull against the skin this morning, when I changed his dressing. So until he gets the J-tube out, I guess he'll have to deal with the irritation as best he can.

and now for my venting ...
This afternoon someone from the doctor's office called - I say someone, because she didn't give me her name. Jim's doctor is on vacation this week, and apparently his nurses as well, so someone else called from the general office.  She asked for Jim, because you know, Jim is the one who gives himself the medicine, crushes it, the whole nine yards. She didn't tell us what his INR reading was after blood was drawn earlier today. She just rushed through saying this is how much Coumadin he'll take Monday, Wednesday, Friday, and something else Tuesday, Thursday, Saturday, Sunday. What happened to slow down and speak calmly?! And then I asked her about an appointment for Jim, because on the discharge information it said within a month he should see his primary care physician. And she says, what discharge ... oh, you mean from the hospital?   Really!?

It's nice that Jim appreciates me .. he's always saying I go above and beyond... I don't know that I do, but as long as he thinks so, I can muddle through the mess of talking to medical personnel who lack commonsense and understanding.

We took a walk after work ... us and the bugs that is. It was a bit longer than the day before,  a full block plus some.

Tomorrow Christina and Austin are coming over, bringing supper... and for dessert, we can have vanilla ice cream, because Jim can eat that!

Tuesday afternoon Jim had a chest x-ray, but we haven't heard results of it yet.

Our frustration continued into the night between Jim and I and the syringes ... we struggled with getting the meds to flow down the tube - they wanted to spurt out instead of in, so about the same time we decided to use the anti-clogging gizmo, we also prayed, and then of course, it worked. We should pray everytime we flush with water and put in meds ... at least twice a day just for this little activity..   

Wednesday, June 3, 2015

Recovery At Home - Day 22

Jim had apple juice this morning. Has not had any pain meds yet today .. not since 9:50 last night. Nearly 12 hours. He is trying to wean himself off them. Still very tired.

Jim slept most of the day. He didn't take any pain meds until 7:50 p.m. and that was because the J-tube was bothering him. He had jello for lunch and chicken broth for supper. He's not eating very much because the tube feedings keep him full. After supper, we drove to Barnes and Noble and HyVee and got some walking in. Also bought a package of small ice cream cups, which Jim can have beginning Friday.  Yum, yum.


Tuesday, June 2, 2015

Timeline

Summer 2014 _____complained of digestive issues (again)

October 7, 2014 ___ Endoscopy scheduled with Dr. Weinman at St. Luke's Hospital, Cedar Rapids. Tissue sample sent to lab at University of Iowa Hospitals & Clinics, Iowa City.

October 21, 2014____Results of tissue sample showed high grade dysplasia related to Barrett's Esophagus. Jim's local doctor mistakenly told us he had cancer.

October 27, 2014___Met with UIHC gastroenterologist specialist, Dr. Henning Gerke, re: endoscopy procedures; indicated there was no cancer, just a greater chance for it to develop

November 18, 2014___Endoscopy with ablation (tissue burning)

February 16, 2015___Endoscopy with tissue cut (tissue sample sent to lab)

February 19, 2015____Received call from Dr. Gerke - Jim has esophageal cancer

March 3, 2015___ PET/CT Scan  ... results show cancer has not spread to lymph nodes. Met his surgeon, Dr. Kalpay Parekh (pronounced Pare-ek), and nurse Joan

March 15, 2015 ___Jim provided pulpit supply at Wilton Baptist Church in Wilton, Iowa ...  Message: "Our God is Able," from 2 Timothy 1:12

March 31, 2015___Endoscopic ultrasound ... results appear to show no tumors  present in area of esophagus

April 1, 2015___Surgery date scheduled for May 5

April 22, 2015____Pre-Op ... lab work, chest and neck x-rays, answers to questions

April 30, 2015____Complained of right jaw pain

May 3, 2015______Jim provived pulpit supply at Fairview Baptist Church near Anamosa.

May 4, 2015_____Dental x-ray reveals major infection; Jim needs root canal,  which was scheduled for 3 p.m. that day; Cancer surgery was rescheduled for May 12

May 5, 2015__Original date for surgery

May 11, 2015____Colonoscopy prep, surgical shower

May 12, 2015_____New date for surgery, 8:15 a.m. ... 6-hour procedure followed by 2 1/2 hours in recovery. NO CHEMO /NO RADIATION / NO MORE CANCER

May 14, 2015____Acquired Afib, a complication of the surgery

May 15, 2015____Moved into a new room, one with a view; started J-tube feedings; tentative release date Sunday, May 17

May 18, 2015_____Final pathology report indicates no cancer; swallow study shows no leakage

May 19, 2015_____Chest tube removed; appears more positive Jim will be released May 20

May 20, 2015 _____Was not released. Bubbles found around lungs; pigtail drain put in; started on Coumadin, a blood thinner. Doctors said Friday would be earliest Jim might go home and suggested we not travel outside the state

May 21, 2015_____Tube with a "whoopie cushion" in it is attached to pigtail drain. Jim was released from the hospital today ... we left at 6:33 p.m., got home at 7:15 and met home health nurse at 7:30 p.m.

May 24, 2015______Attended morning services at Immanuel Baptist Church.

May 26, 2015 ______Complained of left jaw pain

May 27, 2015______Called dentist - 2:40 appointment rescheduled to noon showed lower left molar was internally dying and needed to be pulled

May 28, 2015______Called Morgan & Morio Oral Surgeons ... consultation scheduled for June 16; 11 a.m. appointment at UIHC ... pigtail drain removed as well as sutures, had EKG and chest x-ray, looked at J-tube area and how to bring Jim relief

May 31, 2015________Attended morning services at Immanuel Baptist Church.

June 1, 2015______Visitied UIHC without appointment due to extreme discomfort of J-tube. Nurse Joan snipped one of the four stitches holding the J-tube in place - and replaced the duoderm tape with gauze and paper tape. Feels much better.

June 2, 2015______Grape Juice test - Jim drank a full glass of 9 teaspoons over the course of 20 minutes to test see the neck incision was holding. There was no leakage. On to clear liquids. Had lime Jello and apple juice today. Complained again of left jaw pain - called Morgan & Morio and rescheduled consultation from June 16 to June 9; had chest x-ray at St. Luke's Hospital, Cedar Rapids, per orders from UIHC

June 7, 2015 _____ Jim awoke with intense tummy pain; I got up at 3:20, called on-call thoracic fellow at UIHC, went to St. Luke's ER for x-ray of abdomen. Transfered via ambulance to UIHC by 9 a.m., and later admitted. Left messages with dental offices to cancel upcoming visits.

 June 8, 2015_____10:30 a.m., Permanent filling on tooth repaired by root canal with Dr. John McGrane - CANCELLED, to reschedule

June 9, 2015 _____9:15 a.m., Consultation with Morgan & Morio Oral Surgeons re: removal of lower left molar - CANCELLED, to reschedule

June 10, 2015 _____ Ordered new left contact with Klauer Optical as Jim lost it somewhere in his hospital room's bathroom

June 15, 2015_____2:45 p.m., Appointment with primary care physican, Dr. Todd Butler - CANCELLED, to reschedule

June 17, 2015____ 7:50 p.m., Arrived home after 10-day stay at UIHC for bowel obstruction

June 18, 2015____ Picked up left contact ordered with Klauer Optical

June 22, 2015____8:30 a.m., Appointment scheduled with Dr. WeiWei Li, PCI Cardiology, Cedar Rapids, per orders of Dr. Parekh. Includes EKG

June 22, 2015 ____11 a.m., Appointment Rescheduled with primary care physician, Dr. Todd Butler

June 29, 2015____ 11 a.m., Permanent filling on tooth repaired by root canal Rescheduled with Dr. John McGrane. Includes cleaning

July 1, 2015_____2:30 p.m., 4-week clinic visit with Dr. Parekh

July 7, 2015 _____ 2 p.m., Pulmonary Function test @ St. Luke's Hospital

July 9, 2015 _____ Appointment re-scheduled from July 14 with Dr. Logan Hoxie, PCI Urology

July 13, 2015
 ____ 11:30 a.m. to 1:30 p.m., Part I of nuclear stress test @ PCI Cardiology
July 14, 2015 ____ 10:30 a.m. to 12:30 p.m., Part II of nuclear stress test @ PCI Cardiology
July 16, 2015_____Dr. Li's office called, saying stress test results were abnormal

July 21, 2015______1 p.m., Colonoscopy with Dr. Henning Gerke scheduled at UIHC per orders of  Dr. Parekh - CANCELLED; Rescheduled for Oct. 27

July 23, 2015_____10:30 a.m., Cardiac Catherization / Coronary Angiogram @ St. Luke's Hospital with Dr. Hajj. To check for blockage - if warranted, will put in stent. NO BLOCKAGE. Praise the Lord!

August 3, 2015 ____ 9:45 a.m., Follow-Up Appointment with primary care physician, Dr. Todd Butler

August 4, 2015 ____12:45 p.m., Consultation Appointment re-scheduled from June 9 with Morgan & Morio Oral Surgeons re: removal of lower left molar

August 27, 2015 ____9:20 p.m., Appointment follow-up with Dr. Li @ PCI Cardiology following heart catherization July 23

August 31, 2015 ____2:30 p.m., Appointment with Dr. Morio @ Morgan & Morio Oral Surgeons to remove lower left molar

October 5, 2015 ____11:30 a.m., Appointment with Dr. Butler

October 27, 2015 ____ 10:30 a.m. (check-in), Colonoscopy Appointment re-scheduled from July 21 with Dr. Henning Gerke @ UIHC per orders of Dr. Parekh.

November 2, 2015 ____ 9:30 a.m., Dental Appointment with Dr. McGrane

December 23, 2015 ____ 10 a.m., ReClast!/ Dr. Michael Brooks @ PCI Rheumatology

Recovery At Home - Day 21

Jim had pain meds at 4:10 this morning and was back to feeling hot and clammy, hence the ceiling fan was turned on and windows opened. We got up for the day around 7.

Today is the first day of drinking clear liquids. First he did the grape juice test - I gave him a full glass of it -- all of 9 teaspoonsful, which he drank over the course of 20 minutes. If there was leakage, we were to call UIHC immediately, but alas, there wasn't/there is no leakage, so he can move on to clear liquids as tolerated.  Five to six meals a day - that's like every 2 to 3 hours he can have a little bit -- broth, popsicles, apple juice, jello, etc.

He will stay on a clear liquid diet through June 4 and if everything continues well, on June 5, he can start all liquids.

 At noon, I gave him a little lime jello in a bunny mold and he's ate half of it. Going good ... just still tired.

Since he has less post-surgery pain, now the jaw pain has resurfaced. I called Morgan & Morio Oral Surgeons to see if Jim could get in earlier for consultation and managed to move appointment up a week, from June 16 to June 9.

Jim's sister, Dianne, came for an afternoon visit, and since I had the afternoon off work, we went out for lunch at Zio Johno's -- all 3 of us, except Jim didn't have anything to eat. Food was tasty - Dianne and I were hungry. Then we stopped at the credit union to make a deposit - Dianne needed something sweet, so Jim got her a sucker... LOL. Then on to St. Luke's for Jim's chest x-ray to see if the air outside the lungs has resolved itself, and lastly, we came home. Not an exciting afternoon, but we got lots of visiting done inbetween all the activity.

It's after 5 p.m. now and Jim is having a tiny glass of apple juice. A little bit later we plan to take a walk up or down the street.

Monday, June 1, 2015

Recovery At Home - Day 20


We left the house at 8:30 this morning ... to fill the gas tank, to have blood drawn at MedLabs, to get our hair cuts in Solon and then to UIHC in take care of the J-tube discomfort. And we got home shortly before noon. Answers to prayers. Praise the Lord!

This morning's devotion took me to Isaiah 41:13 --

"For I AM The Lord, your God, who takes hold of your right hand and say to you, 'Do Not Fear. I will help you.' " 

and I wrote --

The pain grips
You want it to go away
Who do you reach out to
Who do you call out to
Is it The Lord,
your God,
who is with you
always with you
He takes hold of your hand
You haven't released your hold
have you
He says to you,
"Do not fear.
I will help you."
He will remove the pain
or
He will lessen the pain
or
He will make a way
for you to cope with the pain
Whatever it is
that He will do
you can be assured
He will help you
For He is The Lord,
your God, my God.

(c) CMOL


Focus on ME
more on ME
than on the trials
surrounding you
Trouble is a constant
a given
But I have overcome
and I can help you too
overcome
the unraveling
that this day
will bring
Focus on ME
Stay conscious of ME
Remember I AM
right here
right beside you
I will guide your steps
I can and I will
equip you
to get through
all
you must endure.
Trust ME.

(c) CMOL

We saw nurse Joan at 10:45 a.m. - she decided to snip one of the four stitches holding the J-tube and that one stitch seemed to be the culprit. It was holding tight, which, it was surmised was causing most of the discomfort Jim was having every time he moved. She removed the Duoderm tape too, washed the area a bit and then put gauze underneath the tube, followed by paper tape to hold in place. When Jim got up, he said it already felt much better. Joan suggested for the next few days to a week to daily wash the area around the J-tube with soap and water, then put the dressing on. When Jim notices no pain, we can stop.

Jim slept most of the afternoon and he feels better.

Dr. Butler's office called and said Jim's INR readings are 2.2 now, so he should take 3 mg coumadin nightly and have his levels checked again on Thursday. 

Sunday, May 31, 2015

Recovery At Home - Day 19

Today is the second day we had uninterrupted sleep, 10:30 p.m. to 5 a.m. Thank you Lord for needed rest.

Our prayers this morning include these requests --

  • pain lessen or disappear in area of J-tube (feeding tube) attached to stomach
  • less water drips when flushing meds through the tube. Thankfully, it is only the water that is causing problems. Not the meds themselves
  • receive paper prescription for more pain medicine before meds run out
  • supply of stool softener lasts to June 13 when insurance will pay for refill or Jim has less need of it.
On Tuesday, June 2, Jim will have his first drink by mouth and that will be grape juice. He will drink up to 4 ounces, I believe, through the day. We are to watch his neck incision - that it does not leak. If it does, we need to call UIHC immediately. Otherwise, if no leakage, he can start drinking clear liquids for a few days and then advance to all liquids.

On Wednesday, June 3, or possibly on the 2nd if it works better, he needs another chest x-ray to see if air bubbles around the lungs have disappeared or at the very least, decreased. He will have this done here in Cedar Rapids at St. Luke's Hospital.

Jim's sister, Dianne, is coming for a visit Tuesday afternoon. 

Today's Scripture readings: 

"May the Lord of Peace Himself give you peace always in every way. The Lord be with you all." ~ 2 Thessalonians 3:16 

"Now acquaint yourself with Him, and be at peace, thereby good will come to you. Receive, please, instruction from His mouth, and lay up His words in your heart." ~ Job 22:21-22

I write:

We search and search
round and round
considering every angle
of where to go
what to do
how to make it happen
endless thinking
where does it get us
have we achieved
what we set out to do
or do we continue to search
for that which
lies within
our grasp
within our hearts
His Peace
His Presence
His Love
Come to Him
Get off the merry-go-round
Let the Lord God lift you
up and off
and show you
how you can
Follow
The Way
Know
The Truth
Live
The Life
of His Son,
Jesus Christ
who was sent
to be our personal
Lord and Savior.
Stop spinning
Reach up, reach out
Take His offered hand
and be lifted up
into His Mighty Presence.
Be obedient to His teachings
Find His Peace
within His Loving Embrace. 

(c) CMOL

We had a nice visit with Rocky, Christina and Austin after I finished Gazette work at 5:30. Rocky, Christina and Jim sat on the patio and visited, while Austin and his grandma Cathy played and ran around the yard. We both got our exercise.

Jim asked me to call UIHC about the area around the J-tube being so uncomfortable, so I did. I mentioned last Thursday when he had the drains and sutures removed, he was given DuoDerm tape, which is softer, to hopefully alleviate some of the intense pressure. But it has not. The Thoracic Fellow On-Call suggested we come down Monday and they would work us in. So after our 10 o'clock appointment in Solon, we'll head to Iowa City.  

Saturday, May 30, 2015

Recovery At Home - Day 18

Praise the Lord! Jim and I both slept 7 hours straight through, from 10:30 p.m. to 5:30 a.m., when he needed pain meds.

Fed-Ex delivered the Amiodorne liquid at 9 a.m., so now we have enough Afib meds to last through the weekend and into the following week.

Devotional thought from the Scriptures:

"As you therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving."
~ Colossians 2:6-7

"Make me understand the way of Your precepts, so shall I meditate on Your wonderful works." ~ Psalm 119:27

"For the eyes of the Lord run to and fro throughout the whole earth to show Himself strong on behalf of those whose heart is loyal to Him." ~ 2 Chronicles 16: 9

I write:

His Presence
we have
within us
as believers
within our hearts
but if we only
let that presence lie
without so much
as a how you do
we miss
ALL He is
ALL He can do
ALL He can be
in every aspect
of our lives.
If / When we
do not start the day
with His leading
nor end the day
with praise and thanksgiving,
the minutes and hours in between
are fruitless
dismal
disoriented.
God wants to equip us
for the day ahead,
but we need to come to Him,
into His Presence
daily
to grow spiritually
in Him, with Him.

(c) CMOL