Hebrews 12:1-2a

"Let us lay aside every weight,
and the sin which so easily ensnares us,
and let us run with Endurance
the race that is set before us,
looking unto Jesus,
the author and finisher of our faith."
Hebrews 12:1-2a
Showing posts with label tiredness. Show all posts
Showing posts with label tiredness. Show all posts

Saturday, October 24, 2015

Second opinion informative - Day 164

Today is Saturday, the 164th day after Jim's esophageal cancer surgery. It has been a mostly quiet day, except for the occasional beep of the heart monitor he is to wear for the next 29 days.

Yesterday - Friday, he had a second opinion appointment with Dr. Stephen Bailin, a cardiologist at UIHC. We like Dr. Bailin - he explains things so you understand what's going on and what isn't and he doesn't give you the impression whatever he says is what you should do. He listens to the patient and the family. He's going to be Jim's new cardiologist going forward. Good-bye Dr. Li.

We arrived 30 minutes early for our appointment. Weight and blood pressure were taken right away - 129 pounds fully clothed and BP was low.... 78/43. The EKG was normal.

We discussed not resuming the Coumadin - he has been off it since Oct. 1, when he was diagnosed with a bleeding ulcer that resulted in another 5-day stay in the hospital. The multiple periods of dizziness and lightheadedness in a given day have been absent. He was feeling better. There have been two brief moments of dizziness, however, in recent days - one was Oct. 18, the other Oct. 19. If there were others, Jim hasn't said.

It was determined even though he had one episode of a stroke (ischemic), he has not been in AFib since his June surgery for the bowel obstruction. It was decided he didn't need to be on Coumadin, just a baby aspirin.

We discussed an alternative medicine to the Flomax taken for the prostate. Flomax can cause low blood pressure / dizziness too. Even though he has been on the medicine for a long time, it may possibly be causing problems in his body now.  So the medicine Alfuzoin was considered as one less likely to cause hypotension. But we didn't end up going that route, at least not right now.

Another potential medicine is Midodrine which can raise blood pressure. Dr. Bailin asked if Jim had had an ultrasound. He did have an endoscopic ultrasound March 31. Apparently Jim has a congenital defect, with a flap-like opening in the wall of the heart. Usually this flap closes at birth, but there are some cases where it stays open. It appears Jim is one of those "cases."

Jim had his blood pressure taken laying down (84/49), sitting up (76/43) and standing (80/45). Then he had blood drawn for a cortisol stimulation test, which shows an excess or deficient amount of cortisol and how the adrenal glands are functioning. I'm not sure what his results mean. The preliminary numbers were 8.4. On Monday, Oct. 26, we found the final numbers to be 22.0 - elevated from the standard range.  By Friday, Oct. 30, we learned the numbers were not abnormal, so I'm guessing the adrenal glands are functioning just fine.

The doctor wants to try him on the Midodrine, the smallest dose of 2 1/2 mg 2 to 3 times a day - morning, noon and supper time. The round pills are very hard to cut in half, even with a pill splitter.

Also, Jim is to be on a heart monitor for 30 days to see how he is doing. Records will automatically transmit to UIHC. Whenever he has an episode (dizziness, lightheadedness, shortness of breath), he is is push the button on the monitor.

Interim Pastorate
Jim began serving as interim pastor at Wilton (Iowa) Baptist Church in October. We started traveling to the Wilton area Tuesday, Oct. 13, to visit church members. The next time was Wednesday, Oct. 21, and Jim went by himself. He did just fine driving to and from.

Sunday, Oct. 18, was Pastor Appreciation Day. All pastors who have ever served at Wilton Baptist were invited to a luncheon after worship. On this day, besides Jim and me, there was Mike and Ginny Roberts. Mike used to serve in the Cedar Rapids area, but now is in southeast Iowa as director of missions. Craig Horning, a former Cedar Rapidian and Immanuel member, who now lives in Deming, N.M., came with us. I had the afternoon off from work, so was able to enjoy more of the festivities.

Sunday, Oct. 25, Jim will preach from 1 Peter: 2:11-25 on "The Nitty-Gritty of Every Day."

Awana and Canning
Wednesdays are special - we take our grandson to Awana - Austin, who will be 4 in a few short weeks, is in Cubbies. He seems to enjoy the time there and is learning about Jesus.

Jim often is tired. I can't imagine why sometimes - he has taken up the art of canning and has come to be pretty good at it, via instructions from the internet. On Oct. 14, he canned 4 pints of tomatoes and 2 pints of applesauce. On Tuesday, Oct. 20, while I did Gazette work at home for six hours, Jim made homemade vegetable beef soup and homemade bread. We delivered the homemade goodies, including applesauce, to Cathy's adopted mommy, Miss Anna, and had a nice visit.

Follow-up visit Nov. 11
Jim's 3-month follow-up visit with Dr. Parekh, his cancer surgeon, has been scheduled for Nov. 11. It may be his 3-month visit, but it's 6 months after surgery.

His next appointment with Dr. Bailin, his new cardiologist, is Jan. 15, 2016.
   

Tuesday, July 7, 2015

Slow going - Day 56

Jim IS getting stronger, but he struggles.  He feels he is always tired and sometimes when he is very tired, he gets frustrated and confused.  But don't we all?   He wants to do things, and we are doing things.  But then he doesn't understand why he is so tired.  He is tired of being tired.

Our second adopted grandson, James David Cook, was born Monday afternoon, July 6, at UIHC.  We were there with our family.  Jim loved being there, holding his new grandson, his namesake, when he was only 2 hours old.  A special feeling he has for this little boy, just like the special bond he and firstborn grandson, Austin Lee, share.  He is glad, we are glad God brought us all together. 

I am tired of not knowing what is going on with Jim.  He fails to share or when he finally does, I am nearing frustration myself.  I have told him we need to trust the Lord. Look to Him and not ourselves. When we only look at ourselves, we become discouraged and depressed, and we don't need to go there.  I know the Lord will take care of us;  He showed us so much during all that time Jim was in the hospital.  He will continue to show us, if we're paying attention to Him and following His instructions. 

We need to stop feeling sorry for where we are not and go with whatever God gives us.  God gives us every ounce of strength we need to face whatever comes.  We must rely on Him alone.



Isaiah 41:10 -- "Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." 

I Chronicles 16:11 -- "Seek the LORD and His strength; see His presence continually!" 

Isaiah 40:28-31 -- "Have you not known? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the LORD shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint." 

PHOTOS FROM JULY 6, 2015

Papa Jim and Grandma Cathy
with second adopted grandson, James.

Papa Jim and James

Our adopted grandsons, Austin and James

Today in the mail we received a check from Wellmark Blue Cross Blue Shield for use of the ambulance Jim required June 7.  The check was for $689, which we delivered to Area Ambulance Service.  We now owe them $413.  We plan to appeal the claim from Wellmark. 

Another thing that only adds to our frustration is the bill we received for the emergency room service at UnityPoint - St. Luke's on June 7. The bill went to Medicare instead of Blue Cross because UnityPoint - St. Luke's does not pay attention to what we have repeatedly told them. 

At supper tonight I asked Jim where his pain is that makes it necessary for him to take the pain medication. I said we had some narcotic meds that are not as strong as the hydromorphone, and he was all for taking them. The pain is primarily in his back. He said it burns. Sometimes his incisions hurt. He mostly lies on his back when sleeping. He tries to lie on his side, but then his incisions hurt, so he returns to his back. I don't know what causes the burning. 

Your continued prayers are appreciated. 


Thursday, July 2, 2015

A tiring day - Day 51

Today Jim has been more tired. Perhaps it was all the activity of this week. He was often tired after just a few minutes of doing something and even when watching TV, would fall asleep.
So, outside of the extreme tiredness, he's been fine. No indigestion and no problems with regular bathroom duties.

Saturday, June 27, 2015

Recovery Continues - Day 46

Today must be a sleepy day. We got up and had Bible study and breakfast. Jim checked his email and soon after, said he was tired. So he has spent most of the morning in his recliner zonked out.

It is interesting.
Today's devotional read said this to me ...

Rest in the Lord for a while
for you have journeyed along a path
steep and rugged
in days not long ago.

The days ahead,
the way,
is covered with uncertainty.

The journey ... Jim's journey, our journey together?

Aren't most days uncertain

Only death is certain
and
Only if you be a child of the Holy King,
is it certain
He, the Lord, is with you.

Plans are made
We pray what we hope will be
will be the Lord's will as well
He directs our steps

The uncertainty
will not make us fearful
if we keep the Lord
close to us
Being aware of Him
Listening for
and hearing
His song of lovingkindness
in the morning Light
Knowing
and understanding
deep within our soul
the way, the steps
to be taken.

In You, Lord
we place our trust.
(c) CMOL