Hebrews 12:1-2a

"Let us lay aside every weight,
and the sin which so easily ensnares us,
and let us run with Endurance
the race that is set before us,
looking unto Jesus,
the author and finisher of our faith."
Hebrews 12:1-2a
Showing posts with label frustration. Show all posts
Showing posts with label frustration. Show all posts

Sunday, July 12, 2015

Moving On - Day 61

It has been 5 days since I last posted anything here.  I didn't have much to report about Jim and I was wary of saying much about me.

Thursday, July 9, was D-Day .... Disaster Day I believe would be an appropriate title.

We had to get up early for an 8 a.m. urology appointment Jim had at PCI Urology. The appointment was two-fold -- one, to discuss issues he had with not being able to produce No. 1 or No. 2 (problems began late June 27 and rectified themselves to normal June 30), and two, a follow-up visit following his recent surgeries.

The visit did not go well. At least not from my standpoint. The problems began with a 45-minute wait before we saw the doctor, who didn't think an explanation was warranted. It continued when the nurse assumed Jim was a new patient, when he has been a patient of Hoxie's for several years. When the nurse asked for a current list of meds, which Jim provided, I said this list was very current. So she made a copy and then proceeded to ask if he was taking a baby aspirin ... are you taking a multi-vitamin -- meds that were not on the list. I repeated twice, "the list you have is current."

To her I was being rude. To me she was not listening very well. So when we left I apologized for stating facts. There are obviously some doctors and nurses who believe they can do or say no wrong.

By the time we left the doctor's office and the building, it was after 9, and I wasn't doing very well. Didn't feel well, was frustrated over the top. I called it a melt-down, maybe it was something else. Jim just held me.

 I was going to post on here, but I thought who would want to know what's going on with me. I was going to post on Facebook and decided not to. I told Jim no. I don't know what to say. If he wanted to do anything, it was up to him.

He did do something. He sent a prayer request to Immanuel folk just for me. I didn't know if anyone saw it because I didn't see it. But by sometime Friday, I was feeling better. I decided even if no one saw the email, God heard it, and He was answering my need. I could feel calmness settle over me.

This is Jimmy's request:
Please lift Cathy up to our Lord in prayer. She will be returning to the Gazette building to work this afternoon. Cathy has been taking care of me and my needs since my first surgery on May 12. So much has been on her, at times it seems to be overwhelming. I myself love her and fully realize all she has been through. We are reminded of God's love for us, and She needs an extra dose of His love and the power of His grace to be heaped upon her.
I appreciate the prayers that have been said for me. But please pray for Cathy.

That afternoon was my first back at the downtown office. I have been working from home since mid-May. I couldn't find a  place to park nearby with a 10-hour meter, so ended up walking four blocks after finding a 4-hour meter. I was exhausted. My ankles hurt because of arthritis, my balance poor because of painful bursitis. I considered turning around and going back home to work.

I got through the day. When I left, I found 10-hour meters so I wouldn't have this same problem on Friday. I was glad to be home.

Friday was a better day. Jim had blood drawn in the morning.  On the way home I stopped at CVS to pick up prescriptions and other meds that cost a small fortune. At the house, the Cooks were here, we were having spaghetti, Rocky was mowing the yard, we took pictures, and in the mail was a card from Ron and Carla Dunnahoo / Wilton Baptist Church. The card was perfect. A picture of Jesus with children .. the verse said -

"One of the greatest privileges of knowing
 Jesus is going to Him in prayer.
There's never a question about 
whether or not He's listening -- He always is.
There's never a question about 
whether or not He has our best at heart -- 
He always does."
Thank you so very much for sending this card to us at this time.

Today is Sunday. A fellow Christian brother was gone because his own brother had passed away, so Jim stepped up to the plate -- from 8:30 a.m. for choir practice/sound check to 9:30 Sunday school, filling in as substitute teacher, to 10:45 worship in the sound booth. He even warmed up Sunday dinner (made meatloaf, mashed potatoes and green beans on Saturday). He was tired and fell asleep this afternoon while I worked, but he is getting better.

Tomorrow we have a busy day. Three appointments, including the first part of a stress test from 11:30  a.m. to 1:30 p.m. The second part of the stress test will be on Tuesday. 

Tuesday, July 7, 2015

Slow going - Day 56

Jim IS getting stronger, but he struggles.  He feels he is always tired and sometimes when he is very tired, he gets frustrated and confused.  But don't we all?   He wants to do things, and we are doing things.  But then he doesn't understand why he is so tired.  He is tired of being tired.

Our second adopted grandson, James David Cook, was born Monday afternoon, July 6, at UIHC.  We were there with our family.  Jim loved being there, holding his new grandson, his namesake, when he was only 2 hours old.  A special feeling he has for this little boy, just like the special bond he and firstborn grandson, Austin Lee, share.  He is glad, we are glad God brought us all together. 

I am tired of not knowing what is going on with Jim.  He fails to share or when he finally does, I am nearing frustration myself.  I have told him we need to trust the Lord. Look to Him and not ourselves. When we only look at ourselves, we become discouraged and depressed, and we don't need to go there.  I know the Lord will take care of us;  He showed us so much during all that time Jim was in the hospital.  He will continue to show us, if we're paying attention to Him and following His instructions. 

We need to stop feeling sorry for where we are not and go with whatever God gives us.  God gives us every ounce of strength we need to face whatever comes.  We must rely on Him alone.



Isaiah 41:10 -- "Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." 

I Chronicles 16:11 -- "Seek the LORD and His strength; see His presence continually!" 

Isaiah 40:28-31 -- "Have you not known? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the LORD shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint." 

PHOTOS FROM JULY 6, 2015

Papa Jim and Grandma Cathy
with second adopted grandson, James.

Papa Jim and James

Our adopted grandsons, Austin and James

Today in the mail we received a check from Wellmark Blue Cross Blue Shield for use of the ambulance Jim required June 7.  The check was for $689, which we delivered to Area Ambulance Service.  We now owe them $413.  We plan to appeal the claim from Wellmark. 

Another thing that only adds to our frustration is the bill we received for the emergency room service at UnityPoint - St. Luke's on June 7. The bill went to Medicare instead of Blue Cross because UnityPoint - St. Luke's does not pay attention to what we have repeatedly told them. 

At supper tonight I asked Jim where his pain is that makes it necessary for him to take the pain medication. I said we had some narcotic meds that are not as strong as the hydromorphone, and he was all for taking them. The pain is primarily in his back. He said it burns. Sometimes his incisions hurt. He mostly lies on his back when sleeping. He tries to lie on his side, but then his incisions hurt, so he returns to his back. I don't know what causes the burning. 

Your continued prayers are appreciated. 


Thursday, June 4, 2015

Recovery At Home - Day 23

Little by little Jim is getting stronger. However, as long as there are stitches in the area around his J-tube, he will have discomfort, because the stitches pull. I could see how the stitches pull against the skin this morning, when I changed his dressing. So until he gets the J-tube out, I guess he'll have to deal with the irritation as best he can.

and now for my venting ...
This afternoon someone from the doctor's office called - I say someone, because she didn't give me her name. Jim's doctor is on vacation this week, and apparently his nurses as well, so someone else called from the general office.  She asked for Jim, because you know, Jim is the one who gives himself the medicine, crushes it, the whole nine yards. She didn't tell us what his INR reading was after blood was drawn earlier today. She just rushed through saying this is how much Coumadin he'll take Monday, Wednesday, Friday, and something else Tuesday, Thursday, Saturday, Sunday. What happened to slow down and speak calmly?! And then I asked her about an appointment for Jim, because on the discharge information it said within a month he should see his primary care physician. And she says, what discharge ... oh, you mean from the hospital?   Really!?

It's nice that Jim appreciates me .. he's always saying I go above and beyond... I don't know that I do, but as long as he thinks so, I can muddle through the mess of talking to medical personnel who lack commonsense and understanding.

We took a walk after work ... us and the bugs that is. It was a bit longer than the day before,  a full block plus some.

Tomorrow Christina and Austin are coming over, bringing supper... and for dessert, we can have vanilla ice cream, because Jim can eat that!

Tuesday afternoon Jim had a chest x-ray, but we haven't heard results of it yet.

Our frustration continued into the night between Jim and I and the syringes ... we struggled with getting the meds to flow down the tube - they wanted to spurt out instead of in, so about the same time we decided to use the anti-clogging gizmo, we also prayed, and then of course, it worked. We should pray everytime we flush with water and put in meds ... at least twice a day just for this little activity..   

Saturday, May 16, 2015

Recovery - Day 4

Jim had a better night of sleeping. Another x-ray of his stomach was taken and sometime during the night he finished the container of nutrition, nicknamed "chocolate milk." He is now on 60 milliliters per hour - that is where it will stay until he discontinues it.

He is constantly complaining of being tired. Even though everyone says how good his color is, he frequently asks why he doesn't feel as good as he looks. One of the surgeons who assisted with a lung transplant yesterday stopped in to see Jim this morning and told him his procedure is right up there with open-heart surgery. So he's tired because of the type of surgery and also because of the pain medication - type and frequency.

Bandy Andy Bear (the bunny) is eating. He hasn't been eating for a couple of weeks because of concern for his daddy.

Jim just called (again) at 10:15 a.m. He said the pain meds coming via IV have been discontinued and he was given an injection through his feeding tube (J-tube). This is how he will receive his pain medication going forward and I will be instructed on how to do this for him.

I brought the over-the-bed table up from the basement. Jim wanted me to find the bed wedge he thought we still had, but I haven't been successful so far. May need to buy a new one, an inexpensive new one, unless someone has one they are not using that we can borrow.

Blake from UnityPoint Home Medical arrived at 11 a.m. He brought 8-plus cases of Osmolite 1.2 high-protein nutrition, an IV-pole, a travel pack for church and other nearby outings, plastic bags for the nutrition and for water to flush, plus the pump. And of course lots of paperwork to sign. I sure hope Blue Cross picks up the tab, since the total comes in at $1406 -- $630 alone just for the nutrition every month.

It was 2 p.m. before I arrived at UIHC. Very quiet on the floor. I learned how to inject the pain medicine into his J-tube. Jim and I did it in tandem - he operated the on-off valve and I did the flushing and medicine delivery. The nurse said Jim could even do it himself if necessary. That's useful information for when I have an appointment.

Jim walked twice today, further distances, and walked me to the elevator when I left for the day. We look for ways to bring some normalcy to our time together.

Today was a frustrating day for me. I didn't sleep well and woke up with a painful left ankle, hip and wrist. I misplaced my wrist brace.

I wrote a poem (see below) that I didn't do well at living up to. I wasn't focusing on the Lord, but on every little thing that only added bumps to my road. It was not a smooth day.

Here's the poem:

Whatever the plan
realize
it never permanent
only possibly
happening
a tentative plan

We do not know
what God has
in mind
for our day

Stay where you are
concentrate
the task at hand
to do
before other things
you think need
to be done

You have much
on your mind
focus on My Presence
let all else
fade away

Pray
Rest
Anticipate
Trust

Step by step
moment by moment
He will guide
our movement

He is our Lord and Savior
Be one
with God
not separated
alone to self
but together
with God alone.

(c) May 16, 2015

I am unsure of my capabilities, unsure how much I can handle, unsure how I can balance work and caring for Jim, unsure I will do it well or even good enough.